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Author Topic: Hey guys. I'm back. :)  (Read 6707 times)

Offline NiserArc

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Hey guys. I'm back. :)
« on: November 22, 2014, 11:19:10 PM »
I'M BAAAAAAACCKK

Yup, I'm back, good ole' Nis is back from a rather long hiatus. Sorry to all of my friends for leaving without a good explanation, School decided that it was gonna take control of the highway of life. x_x But HEY, I'm back now, and it's all fine and dandy. But, now on to some serious stuff.

A lot of you remember me having Arthritis, correct? Well.....turns out I have more than that.

Just 3 days ago, I was diagnosed with not ONE, but TWO chronic diseases, one of which can potentially become life-threatening if I am not careful. The first is Fibromyalgia. What is Fibro? Well, Fibromyalgia is basically when my nerves are much more active in sending pain signals to my brain. So if you pinch my back, instead of it feeling like, ya know, a pinch, it feels like a gosh damn bee-sting. So my nerves send many more pain signals to my brain than what it's supposed to, especially if it's in an area where nerves are very prominent.

The second is EDS, or Elhers-Danlos Syndrome. What is EDS? EDS is a connective tissue disorder, and also a genetic mutation. The collagen in my body is not 'sticky' enough. What is collagen? Collagen is basically the 'glue' of the body. It holds everything together. Everything. So, my joints, muscles, bones, are much looser and unstable than they actually should be. I have type 3 EDS, which is the Hypermobility type. I'm hypermobile, which means my joints can bend in peculiar ways, such as touching my thumb to my wrist, bending my knee backwards, or putting both legs behind my head. I try NOT to do this, because it can cause my joint to dislocate, or pop out of joint. It is a very painful disease, and can cause a lot of problems in the future for me. It affects absolutely everything in my body, even my organs (also including my skin). They currently have me on steroids just to keep the pain at bay.

There is no cure for any of the 3 chronic diseases that I have, but there is treatment.

I really need some support right now guys, and not to mention more friends to be with.

But I will never. EVER. Let this damn thing beat me. It shall /never/ beat me.

Offline Forests

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Re: Hey guys. I'm back. :)
« Reply #1 on: November 23, 2014, 08:27:36 PM »
Oh gosh o:
I really hope you're okay sdofifhsofhi
does it help if I mention I can bend my thumb to my wrist

Welcome back though! I really hope things get better for you!

Offline NiserArc

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Re: Hey guys. I'm back. :)
« Reply #2 on: November 23, 2014, 09:34:12 PM »
Thank you Forry!, I appreciate that! :) And don't worry, EDS only comes in 1 in 250,000 people. I think yer good. XD

Offline Nokey

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Re: Hey guys. I'm back. :)
« Reply #3 on: November 24, 2014, 02:14:52 PM »
Welcome back hun. c:
Hope you stay strong through what you found out! But really ; v ; Welcome back to the large family.
( ͡° ͜ʖ ͡°) I Like the booty, bring me the booty.

Offline NiserArc

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Re: Hey guys. I'm back. :)
« Reply #4 on: November 24, 2014, 04:00:31 PM »
Thank you, I appreciate that! :) I'll do my best. <3

Offline Zaroque

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Re: Hey guys. I'm back. :)
« Reply #5 on: November 27, 2014, 11:29:56 PM »
does it help if I mention I can bend my thumb to my wrist
W
does it help if I mention I can bend my thumb to my wrist
H
does it help if I mention I can bend my thumb to my wrist

A
does it help if I mention I can bend my thumb to my wrist
T ??!?!?

christ
if it helps you too i had an accident when i was younger when a huge steel basketball post fell on my head and has permanently damaged my spine

(:

but thats childs play compared to what you're going through. thats really damn awful. but seriously, if you ever want to talk to /any one/ just remember i'm here for a good heart-to-heart chit chat with you if you're ever up to it.
~ R E T I R E D ~

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"I didn't let my schooling get in the way of my education"
- Mark Twain



Offline NiserArc

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Re: Hey guys. I'm back. :)
« Reply #6 on: November 29, 2014, 05:48:58 PM »
Thank you Zaro, I would love to talk sometime with ya! I appreciate the support so much. :)

Offline War

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Re: Hey guys. I'm back. :)
« Reply #7 on: November 29, 2014, 10:38:59 PM »
Dayum lass that is a right kick in the arse
We all know you will never be easily beaten by such things, 'cause you have every reason not to be beaten by it
Good to see that you'll be around more often again



I have a bad problem in my knee because of accidents in the past, such as /always/ falling on my knees really hard. I usually walk with a bit of a limp nowadays x'D I should probably get it checked

(I can also wrap my legs around my arms in a funny way and walk upright on my hands x'D)

Offline NiserArc

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Re: Hey guys. I'm back. :)
« Reply #8 on: November 30, 2014, 04:35:12 PM »
XD Yeah, this lass is having a good arse-kicking right about now. But I'm pulling through, steadily. And pfft. XD Sounds interesting.

Thank yeh, War! <3

Offline Zaroque

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Re: Hey guys. I'm back. :)
« Reply #9 on: December 01, 2014, 10:40:16 AM »
oh yea and more comfort: war has almost killed herself like. 100 times. accidentally apparently

tbh i think shes gotta be on something to fall down the stairs that much at school
~ R E T I R E D ~

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"I didn't let my schooling get in the way of my education"
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Offline NiserArc

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Re: Hey guys. I'm back. :)
« Reply #10 on: December 09, 2014, 05:28:47 PM »
Yeah, I've heard of her little escapades. Girl needs a guard or somethin' to make sure she doesn't tear herself apart, geez woman.


If she wasn't on something then, she probably is now./shot

Offline War

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Re: Hey guys. I'm back. :)
« Reply #11 on: May 17, 2015, 02:04:02 PM »
Yeah, I've heard of her little escapades. Girl needs a guard or somethin' to make sure she doesn't tear herself apart, geez woman.


If she wasn't on something then, she probably is now./shot
WHOAHWHOAHWOAH
WHY AM I ONLY SEEING THIS NOW
I died holy shit
Yeah I think I'm on too much caffeine

getconnorasabodyguard//shot